Welcome to Kenzig.MS

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Multiple Sclerosis is an unpredictable disease of the central nervous system. It is usually diagnosed by a neurologist after an MRI (magnetic resonance imaging) of the brain and/or the spinal chord. The MRI will show lesions both old and "active" ones which will be lit up. However no single test can conclusively diagnose Multiple Sclerosis. Other diseases must first be ruled out for a provider to make a diagnosis. 

What are the symptoms of Multiple Sclerosis?

Multiple Sclerosis is very difficult to diagnose because a plethora of symptoms can occur in a person and no two people present with the same symptoms. There do tend to be some common ones amongst patients.

The most common symptoms are:

-Fatigue

-Walking Difficulties (gait)

-Numbness in face, body, arms or legs

-Vision problems

-Weakness

-Spasticity (stiffness, muscle spasms, etc.)

-Bladder or Bowel problems

-Dizziness or vertigo

-Cognitive issues

-Pain and itching

-Depression or emotional changes

-Sexual issues

Less common issues are swallowing, tremors, speech problems, seizures, breathing problems and hearing loss.

More information can be found at the National Multiple Sclerosis Society website. 

 

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The National Multiple Sclerosis Society has posted information on Covid-19 Coronavirus for those living with Multiple Sclerosis.

 
 
 
 
 
 
 
Mellen Center Phone Line
The Mellen Center for Multiple Sclerosis Treatment and Research at the Cleveland Clinic has set up a hotline for people with MS and providers who have questions concerning COVID-19. 
 
The Mellen Center COVID-19 Hotline can be reached at (216) 445-9855 and is staffed 8am to 6pm Monday – Friday.  
 
Calls outside of those hours will be returned the next business day. The Mellen Center has established a COVID-19 registry for people with MS for the purposes of collecting data concerning 
1) approaches being used to avoid coronavirus infection, 
2) identifying risk factors for COVID-19 outcomes, 
3) the range of COVID-19 symptoms and outcomes, and 
4) the effects of COVID-19 on MS. 
People with MS calling the Mellen Center COVID-19 Hotline will be offered the opportunity to participate in the study. The Mellen Center also is collaborating with the COViMS North American registry organized by the National MS Society and Consortium of MS Centers to better understand COVID-19 outcomes in a larger population.

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The following are links to pages where you can sign up for Live Events put on by the Drug Companies who make Multiple Sclerosis drugs that are in your area to learn about Multiple Sclerosis Treatments and Therapies. The events are usually presented by prominent area doctors in the field and also some have patients who have taken the drug tell personal stories. 
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Aubagio - Aubagio is an Oral Disease Modifying Drug made by Genzyme also known as Teriflunomide.
Aubagio Live Events Page

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Ocrevus is an infusion drug for both relapsing and progressive Multiple Sclerosis.The first infusion is split over 2 weeks and consecutive infusions are given every six months. No PML has been reported as yet with this drug however it does carry some risk. 
Ocrevus Live Events Page
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Gilenya - Gilenya is an Oral Disease Modifying Drug Made by Novartis also know by the name Fingolimod.
Gilenya Live Events Page
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 Rebif - Rebif is an injectable Disease Modifying Drug made by EMD Serono also known as interferon beta 1-a.
Rebif  Live Events Page
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AMPYRA
Ampyra - Ampyra, also known as "The Walking Pill" and by the drug name dafampridine, is one of the few types of Drugs that actually attempt to help MS symptoms.  Ampyra is made to help patients walk faster and achieve better balance. It does help some patients achieve much better results.              
Ampyra Live Events Page
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Plegridy - Plegridy is an injectable Disease Modifying     Drug made by Biogen also nown as peginterferon beta-a. The drug is similar to Avonex only it is not given as requently.
Plegridy Live Events Page
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Lemtrada is an injectable infusion taken for a full week and only once per year. It is also known as alemtuzumab and like Tysabri is a monoclonal antibody drug.                                                
Lemtrada Live Events Page
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TYSABRI® (natalizumab) is a once monthly infusion prescription medicine used totreat adults with relapsing  forms of Multiple Sclerosis (MS).  Tysabri has one of the highest success ratings in preventing new lesions but carries considerable risks of PML. 
Tysabri Live Events Page
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Tecfidera - Tecfidera is a pill that is usually taken twice per day. 

Tecfidera Live Events Page
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Copaxone is an injectable drug taken daily or three times per week
Copaxone Live Events Page
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Mayzent Logo 
Mayzent is a pill for active secondary progressive multiple sclerosis.                                
Mayzent Events       
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Now Approved
MAVENCLAD® (cladribine) tablets is indicated for the treatment of relapsing forms of multiple sclerosis (MS), to include relapsing-remitting disease and active secondary progressive disease in adults. 
Mavenclad Live Events                   
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    Zeposia a new pill approved for relapsing MS and Secondary progressive MS                                                        
 Site information
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MSWorld 
MSWorld.org has an events page also at the below link
MSWorld.org Events 

 

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